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Neurofibromatosis (NF) Registry Portal

RECRUITINGSponsored by The Children's Tumor Foundation
Actively Recruiting
SponsorThe Children's Tumor Foundation
Started2012-06
Est. completion2030-06
Eligibility
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT01885767

Summary

The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Diagnosed with NF1
* Diagnosed with NF2
* Diagnosed with Schwannomatosis

Exclusion Criteria:

* Failure to complete account registration

Conditions4

CancerNeurofibromatosis 1Neurofibromatosis 2Schwannomatosis

Locations1 site

Children's Tumor Fundation
New York, New York, 10017
Kate Kelts, B.S.N.

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