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Swiss National Registry of Grown up Congenital Heart Disease Patients

RECRUITINGSponsored by University Hospital, Basel, Switzerland
Actively Recruiting
SponsorUniversity Hospital, Basel, Switzerland
Started2013-09
Est. completion2033-12
Eligibility
Age18 Years+
Healthy vol.Accepted
View on ClinicalTrials.gov →

NCT02258724

Summary

Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion Criteria:

Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.

Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.

Exclusion Criteria:

None

Conditions3

Congenital Heart DefectCongenital Heart DiseaseHeart Disease

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