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International Pachyonychia Congenita Research Registry

RECRUITINGSponsored by Pachyonychia Congenita Project
Actively Recruiting
SponsorPachyonychia Congenita Project
Started2004-04
Est. completion2030-12
Eligibility
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT02321423

Summary

International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone consultation to validate questionnaire and free genetic testing.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Clinical diagnosis of Pachyonychia Congenita or similar disorder

Exclusion Criteria:

* N/A

Conditions2

CancerPachyonychia Congenita

Locations1 site

Pachyonychia Congenita Project
Salt Lake City, Utah, 84117
Janice Schwartz801-987-8758jan.schwartz@pachyonychia.org

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