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Cancer Experience Registry (CER) for Cancer Patients and Caregivers

RECRUITINGSponsored by Cancer Support Community, Research and Training Institute, Philadelphia
Actively Recruiting
SponsorCancer Support Community, Research and Training Institute, Philadelphia
Started2013-03
Est. completion2035-01
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations1 site

Summary

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion criteria:

* Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
* Live in United States, a US territory, or Canada
* Able to read and understand English

Exclusion criteria:

* None

Conditions7

Breast CancerCancerCaregiverLiver CancerLiver DiseaseLung CancerNeoplasms

Locations1 site

Cancer Support Community Research & Training Institute
Washington D.C., District of Columbia, 20015
Erica E Fortune, PhD202-659-9709efortune@cancersupportcommunity.org

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