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Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

RECRUITINGSponsored by Duke University
Actively Recruiting
SponsorDuke University
Started2015-07
Est. completion2028-06
Eligibility
Healthy vol.Accepted
Locations75 sites

Summary

Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.

Exclusion Criteria:

1\. Greater than 21 years of age at the time of enrollment.

Conditions2

ArthritisRheumatic Joint Disease

Locations75 sites

University of Alabama at Birmingham
Birmingham, Alabama, 35233
Livie Timmerman205-625-9140liviet09@uab.edu
Phoenix Children's Hospital
Phoenix, Arizona, 85254
Sabrina Gorry602-933-3822sgorry@phoenixchildrens.com
Children's Hospital of Los Angeles
Los Angeles, California, 90027
Ana Cancino323-361-5958ancabrera@chla.usc.edu
Mattel Children's Hospital at University of California Los Angeles
Los Angeles, California, 90095
Alexis Stephens310-825-7257AVStephens@mednet.ucla.edu
Stanford University Medical Center
Palo Alto, California, 94304
Aihua Zhu650-384-5917azhu1@stanford.edu

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