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Hairy Cell Leukemia Patient Data Registry

RECRUITINGSponsored by Ohio State University Comprehensive Cancer Center
Actively Recruiting
SponsorOhio State University Comprehensive Cancer Center
Started2013-01-02
Est. completion2030-12-31
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations4 sites
View on ClinicalTrials.gov →

NCT02560883

Summary

The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion:

* Patients with classic hairy cell leukemia
* Patients with the variant of hairy cell leukemia.

Exclusion:

* Children are excluded from the study, since Hairy Cell Leukemia wasn't described in children.

Conditions2

CancerLeukemia, Other

Locations4 sites

Florida

1 site
University of Miami/Soffer Clinical Research Center
Miami, Florida, 33136
Peggy Gonzalez, M.S.Ed.305-243-8091pgonzalez@med.miami.edu

Minnesota

1 site
Mayo Clinic
Rochester, Minnesota, 55905
Matthew Holets507-266-7208holets.matthew@mayo.edu

New York

1 site
University of Rochester /Wilmot Cancer Institute
Rochester, New York, 14642
Tina Faugh, AAS585-273-3258tina_faugh@urmc.rochester.edu

Ohio

1 site
Ohio State University Comprehensive Cancer Center
Columbus, Ohio, 43210
Derick Campbell614-366-5196HCLRegistry@osumc.edu

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