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ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

RECRUITINGSponsored by Stanford University
Actively Recruiting
SponsorStanford University
Started2016-10
Est. completion2027-03
Eligibility
Healthy vol.Accepted
Locations7 sites
View on ClinicalTrials.gov →

NCT02848274

Summary

The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Eligibility

Healthy volunteers accepted
Inclusion Criteria

* Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center
* Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available

Exclusion Criteria

* Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage
* Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center
* Exclude one-time consultation type of new patients.

Conditions3

CancerMycosis FungoidesNon-Hodgkin's Lymphoma

Locations7 sites

City of Hope
Duarte, California, 91010
Christiane Querfeldcquerfeld@coh.org
Stanford University, School of Medicine
Palo Alto, California, 94305
Tatiana Neal650-709-7838tatianan@stanford.edu
University of Iowa
Iowa City, Iowa, 52242
Vincent LiuVincent-liu@uiowa.edu
Hackensack University Medical Center
Hackensack, New Jersey, 07601
Tatyana Feldman, MDfeldman@hackensackUMC.org
University of Pittsburg
Pittsburgh, Pennsylvania, 15260
Oleg Akilov, MDakilovoe@upmc.edu

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