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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

RECRUITINGSponsored by Children's Hospital Medical Center, Cincinnati
Actively Recruiting
SponsorChildren's Hospital Medical Center, Cincinnati
Started2016-05
Est. completion2026-05
Eligibility
Healthy vol.Accepted
Locations61 sites
View on ClinicalTrials.gov →

NCT02852031

Summary

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Fetuses or newborns diagnosed with HLHS or other univentricular condition
* Intended to undergo Norwood procedure

Exclusion Criteria:

* None

Conditions2

Heart DiseaseHypoplastic Left Heart Syndrome (HLHS)

Locations61 sites

Children's of Alabama
Birmingham, Alabama, 35233
Phoenix Children's Hospital
Phoenix, Arizona, 85006
Joseph Graziano, MDjgraziano@phoenixchildrens.com
Arkansas Children's Hospital
Little Rock, Arkansas, 72202
Cindy Carpentercarpentercynthia@uams.edu
Children's Hospital Los Angeles
Los Angeles, California, 90027
Jay Pruetzjpruetz@chla.usc.edu
UCLA Mattel Children's Hospital
Los Angeles, California, 90095
Nancy Halnonnhalnon@mednet.ucla.edu

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