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Natural History of Wilson Disease

RECRUITINGSponsored by Yale University
Actively Recruiting
SponsorYale University
Started2017-12-18
Est. completion2029-11-15
Eligibility
Healthy vol.Accepted
Locations4 sites
View on ClinicalTrials.gov →

NCT03334292

Summary

The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the optimal testing for diagnosis and parameters for monitoring treatment of WD that will aid product utilization and development.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Known diagnosis of WD
* Able and willing to provide informed consent for adults (Parental/guardian permission (informed consent) and if appropriate, child assent for participants \<18 (or per local Institutional Review Board (IRB) regulation)

Exclusion Criteria:

* Diagnosis of WD has been excluded
* Unwilling to provide informed consent or assent

Conditions2

Liver DiseaseWilson Disease

Locations4 sites

Connecticut

1 site
Yale University
New Haven, Connecticut, 06520
Sefa Keserci, PhD203-376-6043sefa.keserci@yale.edu

Florida

1 site
Advent Health
Orlando, Florida, 32803
Ariana MoraAriana.Mora@AdventHealth.com

Texas

1 site
Baylor College of Medicine
Houston, Texas, 77030
Reza Ameriniareza.amerinia@bcm.edu

Washington

1 site
Seattle Children's Hospital
Seattle, Washington, 98105
Phi Duongphi.duong@seattlechildrens.org

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