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Alpha-1 Research Registry

RECRUITINGSponsored by Alpha-1 Foundation
Actively Recruiting
SponsorAlpha-1 Foundation
Started2019-06-20
Est. completion2029-06-20
Eligibility
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT04157049

Summary

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
* Alpha-1 carriers (PiMZ, PiMS etc.)

Exclusion Criteria:

* Failure to provide informed consent
* Normal healthy individuals (MM)

Conditions3

Alpha 1-Antitrypsin DeficiencyCOPDLiver Disease

Locations1 site

Alpha-1 Foundation
Coral Gables, Florida, 33134
Alison Keaveny, MBBS877-228-7321akeaveny@alpha1.org

Browse More Trials

Liver Disease trialsCOPD trials

Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.

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