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Aftercare of Childhood Cancer Survivors in Switzerland

RECRUITINGSponsored by Kantonsspital Aarau
Actively Recruiting
SponsorKantonsspital Aarau
Started2019-02-12
Est. completion2025-04
Eligibility
Age16 Years+
Healthy vol.Accepted
View on ClinicalTrials.gov →

NCT04284189

Summary

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.

Eligibility

Age: 16 Years+Healthy volunteers accepted
Inclusion Criteria:

* 5-year survivor of childhood cancer
* Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
* Age at diagnosis \<18 years
* Age at study ≥16 years
* At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
* Written informed consent

Exclusion Criteria:

* Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
* \<5 years after therapy of a relapse or palliative situation
* Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
* Insufficient knowledge of the German language
* Informed consent form not signed

Conditions4

CancerChildhood CancerSurvivorshipTransition

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