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The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)

RECRUITINGSponsored by University of Bern
Actively Recruiting
SponsorUniversity of Bern
Started2020-03-02
Est. completion2030-12
Eligibility
Healthy vol.Accepted

Summary

The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Diagnosis of PCD (clinical and test certified)
* Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up

Exclusion Criteria:

None

Conditions3

Heart DiseaseKartagener SyndromePrimary Ciliary Dyskinesia

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