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ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)

RECRUITINGSponsored by Alnylam Pharmaceuticals
Actively Recruiting
SponsorAlnylam Pharmaceuticals
Started2021-04-26
Est. completion2027-04-01
Eligibility
Age12 Years+
Healthy vol.Accepted
Locations13 sites
View on ClinicalTrials.gov →

NCT04883905

Summary

This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.

Eligibility

Age: 12 Years+Healthy volunteers accepted
Inclusion Criteria:

* Documented diagnosis of AHP, per physician's determination

Exclusion Criteria:

* Currently enrolled in a clinical trial for any investigational agent

Conditions2

Acute Hepatic PorphyriaLiver Disease

Locations13 sites

Clinical Trial Site
Birmingham, Alabama, 35233
Clinical Trial Site
Gilbert, Arizona, 85234
Clinical Trial Site
San Francisco, California, 90074
Clinical Trial Site
Baltimore, Maryland, 21205
Clinical Trial Site
Boston, Massachusetts, 02114

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Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.

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