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Community Outreach for Palliative Engagement -- Parkinson Disease

RECRUITINGN/ASponsored by University of Rochester
Actively Recruiting
PhaseN/A
SponsorUniversity of Rochester
Started2022-04-26
Est. completion2026-09-01
Eligibility
Age40 Years+
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT05222386

Summary

The purpose of this study is to learn more about the effectiveness of palliative care training for community physicians and telemedicine support services for patients and carepartners with Parkinson's disease and Lewy Body Dementia (LBD) or related conditions and their care partners. Palliative care is a treatment approach focused on improving quality of life by relieving suffering in the areas of physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Telemedicine is the use of technology that allows participants to interact with a health care provider without being physically near the provider.

Eligibility

Age: 40 Years+Healthy volunteers accepted
Inclusion Criteria:

PATIENT INCLUSION CRITERIA:

• Over age 40 years and diagnosed with PD or other causes of parkinsonism, such as progressive supranuclear palsy, multiple system atrophy and Lewy Body Dementia by their community neurologist.

Exclusion Criteria:

PATIENT EXCLUSION CRITERIA:

* Potential patient subjects who are unable or unwilling to commit to study procedures
* Presence of additional medical illnesses which requires palliative services (e.g. metastatic cancer)
* Already receiving palliative care or hospice services.

Conditions10

Corticobasal DegenerationDementia With Lewy BodiesLewy Body ParkinsonismMultiple System AtrophyParkinson DiseaseParkinson Disease DementiaParkinson's DiseaseParkinson's Disease and ParkinsonismProgressive Supranuclear PalsyVascular Parkinsonism

Locations1 site

University of Rochester Medical Center for Health + Technology
Rochester, New York, 14642
Benzi Kluger, MD585-275-2529benzi.kluger@chet.rochester.edu

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