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Improving Participation in Pulmonary Rehabilitation Through Peer Support and Storytelling

RECRUITINGN/ASponsored by Baystate Medical Center
Actively Recruiting
PhaseN/A
SponsorBaystate Medical Center
Started2023-02-24
Est. completion2026-02-28
Eligibility
Age40 Years+
Healthy vol.Accepted
Locations1 site

Summary

Chronic Obstructive Pulmonary Disease (COPD) affects approximately 16 million Americans and is characterized by recurrent exacerbations that lead to 1.5 million Emergency Department visits and 700,000 hospitalizations annually. Pulmonary rehabilitation (PR) is a structured program of exercise and self-management support that has been proven to relieve shortness of breath and increase quality of life when initiated after an exacerbation, but unfortunately, few eligible patients participate. This project will compare the effectiveness of two novel strategies - one involving video narratives of other patients telling their story of how they overcame challenges and completed PR, the other involving telephonic peer coaching with an individual with lived experience - to enhanced usual care, and to each other, at increasing patient participation in PR after an exacerbation.

Eligibility

Age: 40 Years+Healthy volunteers accepted
Inclusion Criteria:

* 40 years or older
* Received treatment for COPD exacerbation in either inpatient or outpatient setting
* Referred for pulmonary rehabilitation
* Ability to understand and communicate in English
* Willingness to participate in calls with peer coach and to view storytelling videos
* Working phone

Exclusion Criteria:

* Unwilling to attend PR
* Not eligible for PR based on spirometry or other clinical contraindications as determined by PR staff
* Currently enrolled in, or completion of 12 or more sessions of PR in the past
* Comfort measures only or Hospice care
* Resident of long-term care facility
* Unable or unwilling to give informed consent

Conditions2

COPDChronic Obstructive Pulmonary Disease

Locations1 site

Baystate Health
Springfield, Massachusetts, 01199
Rajashree Kotejoshyer9787618709Rajashree.Kotejoshyer@baystatehealth.org

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