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TSC Biosample Repository and Natural History Database

RECRUITINGSponsored by National Tuberous Sclerosis Association
Actively Recruiting
SponsorNational Tuberous Sclerosis Association
Started2016-01
Est. completion2050-12
Eligibility
Healthy vol.Accepted
Locations24 sites
View on ClinicalTrials.gov →

NCT05676099

Summary

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Eligibility

Healthy volunteers accepted
Inclusion Criteria:

* Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).

Exclusion Criteria:

\-

Conditions4

CancerLymphangioleiomyomatosisMultiple SclerosisTuberous Sclerosis

Locations24 sites

University of Alabama Birmingham
Birmingham, Alabama
Jessica Krefting, RN, BSN205-975-2890jessicakrefting@uabmc.edu
Loma Linda University Children's Hospital
Loma Linda, California
Jose Navarro, LVN909-558-5830JDNavarro@llu.edu
University of California Los Angeles
Los Angeles, California, 90095
Ruby Escalante310-206-5586RubyEscalante@mednet.ucla.edu
Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center
Oakland, California
The Children's Hospital
Denver, Colorado
Kaitlyn Kennedy720-777-2674Kaitlyn.Kennedy@childrenscolorado.org

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Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.

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