LEADing Dementia End-of-Life Planning Conversations

Summary

Advance care planning is important for all adults, but perhaps even more so for the 5.7 million persons with Alzheimer's disease or related dementia (ADRD), due to the progressive and protracted cognitive deterioration associated with the disease process. In the context of ADRD, medical decision-making at the end of life is typically left to one's care partner, who often does not have the knowledge or confidence in their ability to make such decisions. This study will refine and evaluate a web-based platform, called the LEAD Intervention (Life-Planning in Early Alzheimer's and other Dementias), which is designed to help persons in the preclinical or early stage of ADRD engage in conversations about, document, and share their end-of-life values and preferences with a care partner, extended family members, and health care providers.

Eligibility

Inclusion Criteria:

* Care Recipient (CR) is age 50+
* CR Is interested in having conversations about and documenting wishes for future end-of-life care
* CR has noticed changes in memory or thinking skills indicative of preclinical or early stage of AD, OR
* CR has been diagnosed with mild cognitive impairment, Alzheimer's disease, or another type of dementia and in the preclinical or early stage
* Care Partner (CP) is age 18+
* CP is a Spouse/partner, family member, or close friend of CR

Exclusion Criteria:

* Has moderate to severe symptoms of dementia

Conditions3

Locations1 site

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