|

National Registry of Rare Kidney Diseases

RECRUITINGSponsored by UK Kidney Association
Actively Recruiting
SponsorUK Kidney Association
Started2009-11-06
Est. completion2039-12-31
Eligibility
Healthy vol.Accepted
View on ClinicalTrials.gov →

NCT06065852

Summary

The goal of this National Registry is to is to collect information from patients with rare kidney diseases, so that it that can be used for research. The purpose of this research is to: * Develop Clinical Guidelines for specific rare kidney diseases. These are written recommendations on how to diagnose and treat a medical condition. * Audit treatments and outcomes. An audit makes checks to see if what should be done is being done and asks if it could be done better. * Further the development of future treatments. Participants will be invited to participate on clinical trials and other studies. The registry has the capacity to feedback relevant information to patients and in conjunction with Patient Knows Best (Home - Patients Know Best), allows patients to provide information themselves, including their own reported quality of life and outcome measures.

Eligibility

Healthy volunteers accepted
* Kidney Rare Disease
* Paeds and adults
* Eligibility differs for each rare disease group
* See: https://ukkidney.org/rare-renal/recruitment

Conditions87

AH AmyloidosisAHL AmyloidosisAL AmyloidosisAdenine Phosphoribosyltransferase DeficiencyAlport SyndromeAtypical Hemolytic Uremic SyndromeAutoimmune Distal Renal Tubular AcidosisAutosomal Dominant Polycystic Kidney DiseaseAutosomal Recessive Distal Renal Tubular AcidosisAutosomal Recessive Polycystic Kidney Disease

Browse More Trials

Cancer trialsDiabetes trialsMultiple Sclerosis trials

Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.

This site does not provide medical advice. Always consult your doctor before considering enrollment in a clinical trial. Learn more on our About page.