Using Social Robots in Children With Rare Diseases and Their Parents: A Feasibility Study

Summary

The goals of this clinical trial are to (a) evaluate the feasibility and acceptability of a social robot intervention for providing family-based care for rare diseases families and (b) explore the effectiveness of the social robot intervention in improving the parent-child relationships and alleviating stress and anxiety for rare diseases patients and their parents. The main questions are: * Is the social robot intervention suitable for and acceptable to rare disease patients and parents? * Does the social robot intervention improve the parent-child relationship of rare disease patients and their parents? * Does the social robot intervention alleviate the stress and anxiety of rare disease patients and their parents? Patients and their parents will interact with the social robot PARO separately and together in each 30-minute course every two weeks for four courses.

Eligibility

Inclusion Criteria:

\[Patients\]

* Aged 8 to 19 years.
* Diagnosed with a rare disease.
* Be Able to communicate in Chinese. \[Parents\]
* A father or a mother of a child with a rare disease.
* Be Able to communicate in Chinese.

Exclusion Criteria:

\[Patients\]

* Have a pacemaker.
* Have open wounds.
* Being infected with infectious diseases.
* Be unable to participate in social activities due to severe psychological disorder or cognitive dysfunction.

\[Parents\]

* Have a pacemaker.
* Have open wounds.
* Being infected with infectious diseases.
* Be unable to participate in social activities due to severe psychological disorder or cognitive dysfunction.

Conditions2

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