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RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

RECRUITINGSponsored by St. Jude Children's Research Hospital
Actively Recruiting
SponsorSt. Jude Children's Research Hospital
Started2024-07-08
Est. completion2026-02
Eligibility
Age8 Years+
Healthy vol.Accepted
Locations2 sites

Summary

Researchers want to learn more about the way stigma affects children with cancer and their caregivers. They want to develop two clinical tools to identify and measure stigma in the pediatric cancer population within culturally diverse global settings of the United States, Guatemala, and Jordan. Primary Objectives * Develop two clinical tools that can be used to identify and measure stigma as experienced by (1) pediatric oncology patients/survivors and (2) their guardians/caregivers in culturally diverse global settings. * Pilot new stigma tools in geographically and culturally diverse cancer referral settings in the United States, Guatemala, and Jordan.

Eligibility

Age: 8 Years+Healthy volunteers accepted
Inclusion Criteria:

* Cognitive Debriefing and Pilot Data Collection - Patients/Survivors

  * Age 8 to 17.9 years of age
  * Active cancer patients or survivors of cancer
* Cognitive Debriefing and Pilot Data Collection - Parent/Caregivers

  * Adult parents or caregivers (≥ 18 years of age) of active cancer patients or survivors of cancer.

Exclusion Criteria: NA

Conditions2

CancerStigma

Locations2 sites

Missouri

1 site
Washington University School of Public Health
St Louis, Missouri, 63110
Sara Malone, PhD, LCSW502-797-0240Sara.malone@wustl.edu

Tennessee

1 site
St. Jude Children's Research Hospital
Memphis, Tennessee, 38105
Dylan Graetz, MD866-278-5833referralinfo@stjude.org

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