Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers

Summary

This study seeks to understand the effects of adult day programs on older adults, especially those with dementia, and their caregivers. A prospective cohort study will be conducted in the Canadian provinces of Alberta, British Columbia, Manitoba, and Ontario. Participants will be (1) older adults with dementia who attend a day program, and their caregivers, and (2) older adults with dementia in the community who do not attend a day program, and their caregivers. The objectives are to (1) evaluate the effects of day programs on attendee and caregiver outcomes, and (2) compare day program use patterns, attendee and caregiver social identities, day program characteristics, and day program outcomes between the 4 provinces, and (3) to explore what attendee and caregiver social identities and day program characteristics are associated with study outcomes, and with day program attendance/non-attendance.

Eligibility

Inclusion Criteria:

* Older adults (65+ years) with a diagnosis of dementia, who live in the community, and either attend an adult day program (cohort 1), or receive continuing care in the community with an initial RAI-HC assessment completed (cohort 2)
* Primary caregiver (i.e., most involved with and informed about the care) of an eligible older adult

Exclusion Criteria:

* Older adults with or without dementia who do not receive any community-based continuing care service
* Day program attendees or community care recipients who do not have a diagnosis of dementia or who are younger than 65 years
* Secondary caregivers

Conditions5

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