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Improving Congenital Heart Disease Care

RECRUITINGN/ASponsored by University of California, San Francisco
Actively Recruiting
PhaseN/A
SponsorUniversity of California, San Francisco
Started2024-09-05
Est. completion2026-12-31
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT06581484

Summary

The theory-informed digital health intervention, called as "Empower My Congenital Health (EmpowerMyCH)" aims to activate and engage ACHD patients in building confidence toward navigating the adult healthcare system. This tool is built after incorporating the theories of behavior change, gathering inputs from target patients in all stages of its design and implementation. The key features of the tool include a digital medical passport, updated congenital information, community support, and patient stories and advice. The investigators aim to test the acceptability, feasibility, efficacy, and effectiveness of the intervention.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion Criteria:

* have congenital heart disease
* 18 years or older
* can sign the informed consent

Exclusion Criteria:

* developmentally delayed
* unable to consent

Conditions6

Activation, PatientBehavior, HealthCongenital Heart DiseaseEmpowerment, PatientHeart DiseaseQuality of Life

Locations1 site

University of California, San Francisco
San Francisco, California, 94117

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