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Myasthenia Gravis Foundation of America Global MG Patient Registry

RECRUITINGSponsored by Myasthenia Gravis Foundation of America
Actively Recruiting
SponsorMyasthenia Gravis Foundation of America
Started2013-10-12
Est. completion2029-09-19
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT06617741

Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion Criteria:

* age over 18
* positive MG diagnosis

Exclusion Criteria:

* age under 18
* misdiagnosed with MG

Conditions14

CancerMyasthaenia GravisMyastheniaMyasthenia GravisMyasthenia Gravis Associated with ThymomaMyasthenia Gravis CrisisMyasthenia Gravis ExacerbationsMyasthenia Gravis GeneralisedMyasthenia Gravis with Exacerbation (Disorder)Myasthenia Gravis, Adult Form

Locations1 site

Myasthenia Gravis Foundation of America
Westborough, Massachusetts, 01581
National Director, Patient Registry800-541-5454mgfa@myasthenia.org

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