|

Rare AutoImmune SElf-management Programme Development

RECRUITINGSponsored by University of the West of England
Actively Recruiting
SponsorUniversity of the West of England
Started2024-10
Est. completion2025-10
Eligibility
Age18 Years+
Healthy vol.Accepted
View on ClinicalTrials.gov →

NCT06642870

Summary

The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion Criteria:

1. Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care: including lupus, systemic vasculitis, myositis, Sjogren syndrome (participant self-report)
2. Ability to give informed consent (with translation support if needed)

Exclusion Criteria:

\-

Conditions8

ANCA Associated Vasculitis (AAV)ArthritisInflammatory MyositisLupusSjogren SyndromeSystemic Lupus ErthematosusSystemic Sclerosis (SSc)Systemic Vasculitis

Browse More Trials

Arthritis trialsLupus trials

Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.

This site does not provide medical advice. Always consult your doctor before considering enrollment in a clinical trial. Learn more on our About page.