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Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients

RECRUITINGSponsored by University of Utah
Actively Recruiting
SponsorUniversity of Utah
Started2024-07-09
Est. completion2027-08
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →

NCT06875700

Summary

Genomic research has shown that a portion of leiomyosarcomas can be attributed to an underlying cancer predisposition syndrome. However, the optimal approach for incorporating germline testing into the care of these patients. This study is assessing the beliefs about the heritability of leiomyosarcoma and other cancer risks, and attitudes towards germline testing among leiomyosarcoma patients.

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion LMS Proband

* Actionable germline PV detected in the research context
* Living
* No prior germline testing for this PV
* Able to speak and read English
* Mentally competent
* Age 18 or older

Relative of LMS Proband

* 25-50% chance for having inherited the PV
* No prior germline testing for this PV
* Able to speak and read English
* Mentally competent
* Age 18 or older

Exclusion (both cohorts)

* \<18 years
* Unable to read or write

Conditions2

CancerLeiomyosarcoma

Locations1 site

Huntsman Cancer Institute at the University of Utah
Salt Lake City, Utah, 84112
Wendy K Kohlmann, MS801-587-5556wendy.kohlmann@hci.utah.edu

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