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Fontan Fitness Trial

RECRUITINGN/ASponsored by Children's Hospital of Philadelphia
Actively Recruiting
PhaseN/A
SponsorChildren's Hospital of Philadelphia
Started2025-06-09
Est. completion2029-04
Eligibility
Age10 Years – 17 Years
Healthy vol.Accepted
Locations1 site

Summary

The goal of this randomized control trial is to learn about physical fitness and exercise habits in children aged 10-17 with the Fontan Circulation through a home-based, digital exercise intervention. The main questions it aims to answer are: * Does a home-based, digital intervention increase physical activity (PA) in youth with the FC compared to enhanced usual care? * Does a home-based, digital intervention increase physical fitness in youth with the FC compared to enhanced usual care? * Do multi-level factors (medical, neurodevelopmental, sociodemographic, neighborhood) impact the effectiveness of the digital intervention? Researchers will compare participants in the enhanced usual care arm to those in the exercise intervention arm to see if the digital intervention is effective. All participants will wear a PA tracker for 12 months and complete testing at baseline, 6 months, and 12 months. In addition, participants in the exercise intervention arm will complete a 6-month exercise intervention with the following components: * aerobic exercise * resistance exercise * engagement strategies

Eligibility

Age: 10 Years – 17 YearsHealthy volunteers accepted
Inclusion Criteria:

* Fontan Circulation present
* Girls ≥11 years of age or menstruating must have negative urine pregnancy test
* Neurodevelopmental capacity to complete all study procedures
* Physical capacity to complete all study procedures
* English speaking with at least one English speaking parent/guardian
* To enroll in the randomized control trial, percent predicted peak VO2 \<80% of age-sex matched normal controls on the baseline exercise stress test (EST)

Exclusion Criteria:

* Inability to complete an EST at any time (i.e. limited physical or executive function)
* Uncontrolled lymphatic disorders
* Exercise induced or uncontrolled arrhythmias
* Pacemaker or internal cardiac defibrillator (ICD)
* Peak VO2 \<45% age-sex predicted
* Having had or under consideration for a heart transplant
* Pregnant or lactating females
* Parents/guardians or subjects who, in the opinion of the investigator, may be non-compliant with study schedules or procedures

Conditions3

Congenital Heart DiseaseHeart DiseaseSingle-ventricle

Locations1 site

Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104
Elizabeth Goldmuntz, MDgoldmuntz@chop.edu

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