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Aim 3: Pilot Study of a Serious Game to Promote Transition Readiness Skills

RECRUITINGN/ASponsored by University of Utah
Actively Recruiting
PhaseN/A
SponsorUniversity of Utah
Started2026-01-22
Est. completion2026-08
Eligibility
Age12 Years+
Healthy vol.Accepted
Locations1 site

Summary

This study involves testing a new video game designed to support adolescents with congenital heart disease (CHD) in preparing to manage their health independently. The game aims to teach essential skills such as communicating with healthcare providers, understanding medical information, and managing appointments and medications. This small pilot study will evaluate the game's usability, acceptability, and its impact on participants' confidence and preparedness for managing their heart care. Feedback will be collected from adolescent participants, their parents, and healthcare providers, and the study will examine how the game influences communication during clinical visits.

Eligibility

Age: 12 Years+Healthy volunteers accepted
Inclusion criteria:

\- Patient with congenital heart disease, their parent, and their clinician

Exclusion criteria:

-Significant visual or cognitive impairment that would impede their ability to play the game and/or complete the study.

Conditions7

Congenital Heart DefectCongenital Heart Disease in AdolescenceHeart DiseasePatient Centered CareSerious GamesTransition to Adult CareTransition-age Youth

Locations1 site

Primary Children's Hospital and University of Utah Health
Salt Lake City, Utah, 84108
Rebecca K Delaney, PhD801-213-2557rebecca.delaney@hsc.utah.edu

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