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Assessment of Patient Experience With Auto-Captioning Glasses in NF2-Related-Schwannomatosis

RECRUITINGN/ASponsored by Massachusetts General Hospital
Actively Recruiting
PhaseN/A
SponsorMassachusetts General Hospital
Started2026-02
Est. completion2026-12
Eligibility
Age18 Years+
Healthy vol.Accepted
Locations1 site

Summary

The goal of this clinical trial is to investigate the usability of auto-captioning glasses for adults diagnosed with NF2-related schwannomatosis and loss of hearing. The primary objective of the study is to determine the feasibility and acceptability of auto-captioning glasses in this population. Participants will be asked to: * Use the glasses at their discretion for 12 weeks * Report their feedback at 3 and 12 week timepoints via online surveys and remote qualitative interviews

Eligibility

Age: 18 Years+Healthy volunteers accepted
Inclusion Criteria:

* Diagnosis of NF2-SWN by 2022 revised criteria
* Age 18 years or older at time of consent
* Willing and able to sign informed consent
* Access to a mobile phone with current operating software (i.e., iOS 16+ or Android 12+) and an internet connection
* Does not require prescription glasses to communicate others (e.g. may use reading glasses or similar)
* Resident of the U.S.
* English-speaking

Exclusion Criteria:

* Current use of auto-captioning glasses

Conditions2

CancerNF2-related Schwannomatosis

Locations1 site

Massachusetts General Hospital
Boston, Massachusetts, 02114
Paulina Arias Hernandez, MSWpahernandez@mgb.org

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