Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia

Summary

Fibromuscular dysplasia (FMD) is a disease of the arteries that is not due to plaque build-up or inflammation. While some patients with FMD are health, some may experience heart attacks, strokes, aneurysms or blood vessel dissection/tearing which can be life-threatening. It predominantly impacts women and younger patients. As a result of this diagnosis, many patients are counseled to restrict or avoid certain physical activities out of concern for provoking or worsening vascular complications. There are no guidelines or consensus recommendations regarding appropriate physical activity for patients with FMD. The lack of consensus may lead to confusion for patients and may negatively impact their quality of life. This study will conduct a large, national survey of patients with FMD to assess the type of physical activity restrictions and impact on quality of life and emotional well-being.

Eligibility

Inclusion criteria:

* Participants with a diagnosis of fibromuscular dysplasia
* Age range = 18-100 years

Exclusion Criteria:

* Subjects who have an inability to complete the electronic consent form or electronic survey for any reason
* Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey

Conditions4

Locations1 site

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