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Implementation of an Accessible Healthcare Model (ACHD STRONG): Comparing Nurse and Physician Lead Healthcare Transition Education in a RE-AIM Framework
RECRUITINGN/ASponsored by University of Wisconsin, Madison
Actively Recruiting
PhaseN/A
SponsorUniversity of Wisconsin, Madison
Started2025-12-01
Est. completion2026-11-30
Eligibility
Age12 Years – 26 Years
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →
NCT07559253
Summary
The study includes patients with congenital heart disease (CHD), as well as their support persons and their providers, who are preparing to make the transition from pediatric to adult care for their CHD. The purpose of this study is to improve the tools available to help find doctors as patients enter adulthood. 200 people with CHD and support people will be enrolled.
Eligibility
Age: 12 Years – 26 YearsHealthy volunteers accepted
Inclusion Criteria (Patient Participants): * Diagnosed CHD patients between the ages of 12-26 will be eligible * Able to provide assent when seen by a pediatric or adult congenital cardiologist provider. * A subset of patients will self-identify as having a disability, and or, be identified with disabilities in their medical or educational records. * Participants to provide assent/consent and complete all study activities in English or Spanish * Participants under the age of 18 must have a legal guardian who is able to provide consent in English or Spanish. Exclusion Criteria: * Providers may decline participation of any patient at their clinical discretion
Conditions2
Congenital Heart DiseaseHeart Disease
Locations1 site
University of Wisconsin
Madison, Wisconsin, 53792
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Trial data from ClinicalTrials.gov. Trial status and eligibility can change — verify directly with the study contact or on ClinicalTrials.gov.
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Actively Recruiting
PhaseN/A
SponsorUniversity of Wisconsin, Madison
Started2025-12-01
Est. completion2026-11-30
Eligibility
Age12 Years – 26 Years
Healthy vol.Accepted
Locations1 site
View on ClinicalTrials.gov →
NCT07559253